2015 Joint Annual Meeting
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Incontinent Urinary Diversion in Young AdultSpina Bifida Patients
Erin McNamara, Evalynn Vasquez, Rebecca Sherlock, Carlos R. Estrada, Jr.
Boston Children's Hospital, Boston, MA

Introduction: Managing the urinary tract of young adults with
spina bifida (SB) who can no longer manage with clean intermittent catheterization (CIC) presents a unique challenge for urologists. We present our experience with this population from our SB clinic, in which we care for patients from birth to 35 years.
Methods: With IRB approval, we completed a retrospective chart review of SB patients who underwent incontinent urinary diversion in the last 3 years. We collected demographics, preoperative testing, operative characteristics and postoperative events.
Results: We identified six patients who underwent incontinent urinary diversion. Table 1 highlights important patient characteristics, indication for procedure, and complications. The median age at time of surgery was 28.3 years. 5 (83%) patients had significant comorbidities, including hypertension, CKD, severe restrictive lung disease, and sleep apnea. Prior to surgery, all patients had an ultrasound and urodynamics and were evaluated by the complex care service. Median operative time was 313 minutes (range 213-594). The median length of stay was 25 days. 5 (83%) required ICU postoperatively and 4 (67%) had major postoperative complications. At a median of 41.4 months (range 4-67), all patients are dry and renal function is stable or improved.
Conclusions: Incontinent urinary diversion should be considered in young adult SB patients. These patients are complex with high risk of postoperative complications. Clear expectations and goals should be established preoperatively.
PatientAge (yrs)GenderComorbiditiesGuardianIndication
for surgery
Type
of procedure
ComplicationLOS
(days)
126MHypertension
Chronic
Kidney Disease Stage III, Obesity, Shunted hydrocephalus, Mild intellectual
disability
UncleWorsening
renal function, bilateral hydronephrosis, poorly compliant bladder,
non-compliance with CIC
Sigmoid
Vesicostomy
None30
233MSevere
restrictive lung disease, Hypertension, Chronic Kidney Disease Stage III,
Shunted hydrocephalus, Obstructive sleep apnea
OwnIndwelling
suprapubic catheter, incontinence, recurrent urinary tract infections
Ileo-
Vesicostomy
Cecostomy
tube
Bladder
neck closure
Prolonged
intubation, Ileus, Abdominal abscess with shunt infection
57
331FShunted
hydrocephalus, Obstructive sleep apnea
OwnIndwelling
catheter with patulous urethra and incontinence s/p failed sling
Cystectomy
L◊R TUU
Sigmoid
conduit
Prolonged
intubation, Urine leak from TUU
22
421MHypertension,
Severe intellectual disability, Multiple chromosomal anomalies, G-tube
dependent
MotherWorsening
renal function, bilateral hydronephrosis, poorly compliant bladder,
difficulty maintaining CIC
Ileo-
Vesicostomy
Respiratory
distress requiring ICU transfer
23
524MMild
intellectual disability
Foster
care
Poorly
compliant bladder, non-compliance with CIC
Ileo-VesicostomySmall
bowel obstruction with surgical intervention
26
631FSevere
restrictive lung disease, Shunted hydrocephalus
OwnIndwelling
catheter with patulous urethra and incontinence. h/o gastric augmentation
with multiple perforations (5)
Partial
cystectomy
Ileo-Vesicostomy
Bladder
neck closure
None11


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